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CHRONIC FATIGUE & FIBROMYALGIA SYNDROME

Many experts believe that chronic fatigue syndrome (CFS) and fibromyalgia are related. Fibromyalgia patients suffer more from the muscle pain than from the fatigue component; CFS patients suffer predominantly from the fatigue component. Chronic fatigue syndrome is generally thought to be associated with the Epstein-Barr virus, a virus that belongs to the herpesvirus family. About 90 percent of all adults carry this virus.

According to specialists, fibromyalgia syndrome (FMS) "...is a specific, chronic non-degenerative, non-progressive, non-inflammatory, truly systemic pain condition -- a true syndrome" (van Why, 1994). Since FMS and CFS appear to be related or at least in the same family, procedures that work to ameliorate one symdrome will also exert positive effects on the other.

FMS was first described by William Balfour in 1816. Fibromyalgia has been known by many names including "rheumatism," chronic rheumatism, myalgia, pressure point syndrome and fibrositis. Most current thinking suggests that fibromyalgia belongs in the rheumatoid family of diseases. If FMS and CFS are indeed related, then chronic fatigue syndrome is also one of the rheumatoid diseases. Whether suffering from CFS or FMS, most patients suffer from chronic muscle pain that is characterized as "achy" and sometimes as sharp, burning, shooting and throbbing. This pain is unresponsive to standard analgesics.

FMS and CFS patients most often describe pain in the lower back, shoulders, back of the neck, often extending up into the back of the head, upper chest and thighs. However, FMS pain has been reported in all muscle groups. The pain is usually associated with morning stiffness and often with scleroderma-type skin disorders (another member of the rheumatoid family of disorders).
The diagnosis of fibromyalgia requires that at least 11 of 18 specified tender points be confirmed as tender to painful under slight thumb pressure. Moreover, these pressure points must be distributed equally in all four body quadrants. The diagram in the appendix shows the location of these tender points. The diagnosis of CFS does not require the presence of equally distributed pressure or trigger points.

FMS is far more common in women than men and typically begins in early adulthood or late teenage years. CFS is three times more prevalent in women as men. As with most rheumatoid disorders, the symptoms begin gradually and slowly increase in strength over a 5 to 10 year period. The symptoms are typically made worse by overexertion, stress, lack of exercise, anxiety, depression, sleep loss, injury, temperature extremes, and illness.

CFS appears related to the Epstein-Barr virus. When the immune system is healthy the Epstein-Barr virus usually poses no risk and remains silent, a life-long companion. In the absence of immunity however, Epstein-Barr can cause the high fevers and malaise of infectious mononucleosis. Epstein-Barr also promotes the development of smooth muscle tumors as well as active infections of the body's white cells. The virus appears to spur these infected cells to proliferate. Most such tumors (leiomyomas) seem harmless and go away. However, in some patients these growths turn malignant (leiomyosarcomas). These same smooth muscle tumors are also seen in young people with AIDS. They usually occur in the lungs, colon, stomach, intestine and liver.

FMS and CFS patients also suffer from diverse additional disorders. All of these disorders are part of the FMS / CFS syndromes. These disorders may include "...headaches, irritable bladder, dysmenorrhea, cold sensitivity, Raynaud's phenomenon, restless legs, atypical patterns of numbness and tingling, exercise intolerance and complaints of weakness." (Starlanyl and Copeland, Fibromyalgia & Chronic Myofascial Pain Syndrome, New Harbinger Publications, Oakland, CA 1996). Moreover, fibromyalgia can also cause symptoms like sleep disturbances, visual disturbances including blurring, hearing losses, and the inability to maintain balance resulting in falling, itching, pelvic discomfort including pain. Depression is often present and is more predominant in older patients. In younger patients skin disturbances similar to scleroderma seem more common. But regardless of age "...the presence of unexplained widespread pain or aching, persistent fatigue, generalized morning stiffness, non-refreshing sleep, and multiple tender points..." confirms the diagnosis. (Starlanyl and Copeland, Fibromyalgia & Chronic Myofascial Pain Syndrome, New Harbinger Publications, Oakland, CA 1996).

FMS is difficult to diagnose and CFS for years was laughed off by mainstream medicine as psychosomatic. Both syndromes can occur at any age. Pain is usually the first symptom to appear but not always. Sometimes the body's temperature regulation system is the first to show signs of disorder. You may notice that you begin to feel hot at night during sleep. This hot feeling wakes you up and you have to get up believing that you have to urinate. Sometimes bladder irritability is the cause of waking up. Then when you get back in bed you often have to wait until you cool down to go back to sleep or pull the covers up.

Sometimes the symptoms (especially of FMS) begin as spasticity or tightness of muscles. This tightness can be so strong that it feels like your hands are swollen and edematous. Sometimes you experience Raynaud's phenomenon (blanching of the fingers) especially during the cold seasons. Not only are the finger vessels constricted, but often the vessels of the buttocks and thighs. These areas feel markedly cold to the touch.

Sometimes you may begin to see skin mottling (blotchy looking skin) as the first signs of fibromyalgia. Many FMS patients suffer from brittle finger nails which can break off in moon-shaped or crescent shaped pieces. Many times the nails begin to grow under or they may even "spoon."
Unlike most CFS patients, FMS patients may exhibit signs of figidity, attention deficit disorder or an inability to sit in any one position for longer than 15 to 20 minutes. If they remain immobile they tend to get stiff. In fact, generalized morning stiffness is typically severe.

But, on the other hand excessive muscle movement (to prevent the onset of stiffness) becomes exhausting and often leads to over exertion. Tremendous fatigue can also accompany these symptoms. Similar to multiple sclerosis patients, fibromyalgia patients also show reduced coordination.

According to Starlanyl and Copeland "FMS is a sensitivity-amplification syndrome. Because of this it has been called the "Irritable Everything Syndrome." This means that fibromites are sensitive to smells, sounds, lights, and vibrations. The noise emitted by fluorescent lights can drive them crazy."
"FMS sensitizes the nerve endings, which means that the ends of the nerve receptors have changed shape. Because of this, for example, your body might interpret "touch, light, or sound" as "pain." This typically leads to anxiety, pituitary-adrenal axis stress and increasing negative feedback. While CFS patients may suffer similar distress to environmental stimuli it usually is not as severe as in FMS.

Confounding the picture even more, both FMS and CFS can co-exist with diverse other conditions including: carpal-tunnel syndrome, cerebral palsy, chronic fatigue syndrome, depression, HIV disease, AIDS, hypoglycemia, thyroid disorders, hypermobility syndrome, lupus myositis (discoid lupus) [limited to the skin] and lupus erythematosus [occurs in connective tissue]. Discoid lupus creates "a scaling red, pink or brown rash, often in the shape of a butterfly over the face, although it is not limited to that area. This rash is very photosensitive, and patients with this condition must avoid the sun." Systemic lupus erythematosus "can also cause a butterfly rash, but all of the connective tissue can be involved, not just the skin." Both FMS and CFS may also be found in patients with mitral valve prolapse, multiple chemical sensitivities, multiple sclerosis, osteoarthritis, Parkinson's disease, post-polio syndrome, Raynaud's phenomenon, reflex sympathetic dystrophy syndrome, rheumatoid arthritis, TMJ disorder, and Candida (yeast) infections.

FMS and CFS and most of the above mentioned disorders are the end result of pathological increases in permeability of the intestinal mucosa. Such increases in gut permeability have been referred to as Leaky Gut Syndrome. Therefore, FMS and CFS are referred to by this writer as essentially leaky gut disorders.

An understanding of the causes (etiology) of Leaky Gut Syndrome may help you understand the probable mechanisms involved in a wide range of systemic disorders.
Much literature and hundreds of studies show leaky gut syndrome (LGS) to be the primary problem in inflammatory bowel diseases such as ulcerative colitis, Crohn's disease, and irritable bowel syndrome. LGS is involved in virtually all food allergies and certain "auto-immune" diseases such as rheumatoid arthritis, ankylosing spondylitis, lupus erythematosus and atopic and eczematous dermatitis, vasculitis, intestinal toxemia (endotoxemia) microbial translocation, dysbiosis, joint pain and inflammation, fatigue, malabsorption and other diseases including chronic fatigue, multiple sclerosis, Guillain-Barre syndrome, herpes and fibromyalgia. Obviously, correcting LGS dysfunctions is critical to the success of any program designed to conquer fibromyalgia, chronic fatigue or any of the LGS disorders.

Kits to help in cleansing your body and helping to reverse CFS & FMS are available through Spirit of Healing. Some of these kits are listed below.

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